Join Our LinkedIn Group!
- By Peter Sanders
- •
- 30 Jun, 2017
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We have created a Group in LinkedIn called Kidney Stone Research.
We wanted to create a group for sufferers to contribute to find solutions and communicate amongst each other if they wish. We encourage all sufferers to start a discussion or simply join in on conversations that are already happening.
The Kidney Stone Research Group will enable all sufferers to advise us on what area of research the sufferer would like us to support.
We hope that this will help discussions to develop on to a research item that will be even more helpful for the Charity Trustees.
As we continue to grow this community, we hope that all members of our new group, will help newcomers to the pain, by explaining how they coped, and what they did.
We look forward to hearing about your experience and solutions soon.
Please remember those drinks you like might have been contributing to your present stone but water will not add to your stone but help in flushing out your kidneys
Kidney stone sufferers have told Beat Kidney Stones to raise money to fund the NICE recommended research into finding the fastest effective administration of first stage pain relief.
Pain relief is uppermost in all sufferers minds because they all experience extreme levels of pain. Pain cannot be measured but to lose consciousness is a good indicator of seriousness and nearly all sufferers will lose consciousness at least once during the first slight movement of a stone.
If you would like to help then please use the donate button or contact the Charity directly.
For family and friends of a sufferer; be prepared for your sufferer to suddenly collapse or to suddenly stop moving mid movement. They will not talk because that makes the pain worse. Do not move them and just keep them warm and safe. Very soon they will talk and give you instructions, like, get my pills!
Acute pain is experienced by all sufferers and Beat Kidney Stones is now raising money to support the following research recommended by NICE:
“What is the most clinically and cost effective route of administration for non-steroidal anti inflammatory drugs (NSAIDs) in the management of acute pain thought to be due to renal or ureteric stones?”
The routes of administration for NSAIDs are: intravenous, intramuscular, oral or rectal.
Acute pain is bad enough but if the administration of NSAIDs by one particular route causes a quicker reduction in the pain then that needs to be known about and published for all to act upon.This Charity intends to support all of the 5 research recommendations made in the NICE Guideline published on the 8-1-19. If any of the other research proposals is your preferred choice for support and you tell the Charity which it is, then the Charity will allocate your donations accordingly.
A no risk or a no pain stone removal exists either!
Preventative treatment following shockwave lithotripsy and Non-steroidal anti-inflammatory drugs - route of admission.
This Consultative Guideline's title is Renal & Ureteric Stones: Assessment & Management.
It would seem it is about the sufferers pathway through Hospital. The steps and time taken to diagnose, treatment options, accessibility of treatment, possible sufferer transfer out of area for treatments, actual treatments, success of treatments and long term condition of the sufferer after treatments.
If you think I have missed anything then please email me at Peter@beatkidneystones.co.uk
Nevertheless very little was out there. Sadly only anecdotal treatments were found and those were not based on scientific facts but science fiction or folk lore.
This was another reason why Beat Kidney Stones was formed.
